Morphine

The calendar said late May and I needed to finish the school year.  Yet, he now lay relatively helpless in his bed at the mountain cabin.  We had an overlap of time to solve.

Now, three years plus later, it would have made more sense to take off the last two weeks of the term and care for my husband.  But living forward in time, the curse of us all, I was sure the school couldn’t remain standing without me.  I was compelled to finish the academic year.

In an act of kindness, Chad’s younger brother, Peter, agreed to travel from North Carolina so I could work until the last day of school.  Underneath Peter’s offer lived an honest fear of losing his big brother to cancer.  It was easier for him to come to the mountains and see for himself than wait for second-hand news from me.

After his arrival it didn’t take too long for Chad to snap at his brother, too.  My husband felt so rotten, suffering so miserably, and his rants exploded over any provocation.  Fortunately, Peter took his brother’s outbursts in stride, seeming unaffected. I will always be grateful for his kindness and forbearance that terrible spring.

Once school adjourned, Peter left and we were on our own.  Every morning, after his loading of liquid nutrition and pain meds, we were off to the tumor center.  After his radiation treatment, or his chemotherapy we often met with other staff regarding his care.  The dietician took us aside and spent about forty five minutes showing us boxes of canned nutrition.  Neither of us could decide what the hell that was about.  The tube specialist checked his peg tube to make sure is was functioning properly.  Sometimes we saw the cowgirl, and at other times, the chemo oncologist.  I liked her enormously.  She dealt with us in a way that said “I know this is awful, and I will do my best.”

Over time the torture in his throat reached new levels of agonizing, searing heat.  Both of his physicians along with an array of nurse practitioners wrote all sorts of prescriptions for pain medications.  On his shoulder, Fentynal patches, crushed in water and injected through his tube, hydrocodone.  And injected straight through his peg–morphine liquid.  Chad also had a gargle of morphine suspension to hopefully trickle down his throat and put out the fire.  Oh, and melted percocet, too, right up the tube.

This descent into medicated hell set the stage for our “new normal.”  Living with Chad’s outrageous pain and altered personality wasn’t too easy. And a new dark age of fear and morphine closed in around us.

Bridled

Image

A blond nurse in heavy makeup called his name, and my husband dutifully rose, glancing at me to do the same.  Delaying for a moment, debating my options, I stood too.

Back in an examination room his radiation doctor, a young, attractive cowgirl, took pictures of his neck–both sides–and displayed a CT scan undeniably bearing a clear tumor profile. There was no mistake, the ENT’s diagnosis was correct–Chad had stage four tonsil cancer and surgery became paramount.  This radiation doc announced that she had all ready reserved a date for his tonsillectomy.

This particular oncologist was a very perky, affirming young physician.  Wearing cowboy boots, and a western cut shirt featuring mother-of-pearl snap buttons, she and her assistant in smiling upbeat tones clarified what we could expect from his cancer treatment.  She described a restraint mask, gesturing toward his imaged tumor, that she would construct.  Using the proper measurement of his jaw line and tumor dimensions, the mask would provide marked targets for the radiation laser.  Chad would have to sit for a plaster fitting soon so she could fabricate a precise mold.  The radiation would blast any unchecked cancer cells the surgery didn’t remove.

Smiling with her mouth, not with her eyes, the oncologist admitted that neck-throat-esophageal cancer is the worst type on the patient.  She elaborated her point explaining that the neck has no thick layers of skin or muscle to protect the esophagus from extensive damage.  Elaborating, the doctor continued that as soon as the tonsils were out, Chad would undergo a minor procedure to have a feeding tube placed into his stomach for sustenance.  His throat would very likely become too burned to perform a swallowing reflex.

When we arrived home I confessed to him that I didn’t think I had another crisis in me.  In my previous marriage there had been nothing but catastrophe–in this marriage we had struggled with a blended family.  Just the thought of another calamity paralyzed me from the inside out.  I honestly wanted some way to take a pass on this new one.  He just hugged me, almost in desperation, saying everything would be all right.  I wasn’t assured.

When My Worst is My Best

The tumor institute quickly became far too familiar, an unsolicited home away from home.  He’d press the down button on the stainless steel elevator, lowering us into that stark, beige basement–the waiting room.  An ordeal.  I pretended to be brave. 

The smell in the unit was a combination of baby powder and rubbing alcohol, probably from the hand sanitizer dispensers positioned everywhere on those bland beige walls.  Fox News blared from a 12 inch television in the corner— while stunned patients and family members stared.  Health magazines and pamphlets were scattered on cookie cutter office chairs and faux-wood end tables. 

We didn’t belong in this surreal place and neither of us were prepared for what was coming. 

Walking phantoms, hairless and fragile, shuffled awkwardly, angular-ly across the nondescript carpet, escorted by unnaturally jolly nurses dressed in flowery scrubs.Patients ambled down one of two passages traversing this subterranean ward.  A straight hall toward the right led to the radiation wing while to the left lay the chemotherapy suite. 

I might have giggled when I imagined we had entered an episode of  the Twilight Zone, encountering wraith-like aliens in a windowless underworld. But there was nothing humorous about this place.  People lived or died here, and I somehow grasped that I couldn’t accept this room, with its contrast of sick men and women tended to by a cheer leading squad. 

And that marked the beginning of my own hell–a disassociation reflex that formed to shield my mind.  I couldn’t process this unexpected, horrifying reality. 

For Chad, well, he was just all eyes, trying with all his might to make the hospital and his condition seem smaller, incidental, a bump in the road—but our surroundings betrayed his assurances. 

Update

Hey folks,

Sorry I haven’t blogged in a few days.  I actually have been involved in two-day writing seminar.  Tomorrow is the big day for the next increment for River of January.

In the meantime, I need to ask something of you.

Would you please send your personal email to me at

chumbleg@aol.com

It is a way that I can keep you up-to-date on the final publication day for this epic book.

Thank You for reading along!

Gail Chumbley

chumbleg@aol.com